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Finally, A National Rare Disease Policy - So What’s Next?

Finally, A National Rare Disease Policy - So What’s Next?

Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society | Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

How Newborn Screening Helps SCID Families (And Other Rare Disorders)

How Newborn Screening Helps SCID Families (And Other Rare Disorders)

Associate Professor Dr Adli Ali, Consultant Paediatric Immunologist | Bruce Lim, President, Malaysian Patients' Organisation for Primary Immunodeficiencies (MYPOPI)

When Treatments & Trials for Rare Disorders Exclude Malaysia

When Treatments & Trials for Rare Disorders Exclude Malaysia

Catherine Jayasuriya, Founder & Executive Director, Coalition Duchenne | Nadiah Hanim Abdul Latif, President, Malaysia Rare Disorders Society

Is Gene Editing The Silver Bullet for Rare Disorders?

Is Gene Editing The Silver Bullet for Rare Disorders?

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

 Living With A Rare Disorder & Going Through Puberty

 Living With A Rare Disorder & Going Through Puberty

Azhar Talib, Parent and President, Prader-Willi Syndrome Association of Malaysia | Professor Dr Prof Dr Muhammad Yazid Jalaludin, Consultant Paediatric Endocrinologist

Physiotherapy For Children with Rare Disorders

Physiotherapy For Children with Rare Disorders

Sharfiza Abdul Aziz, Senior Paediatric Physiotherapist | Nur'shafinaz Binti Salehen, Mother to Ahmad Ammar Adam

Doctor in the House: A New Treatment for Neurofibromatosis in Malaysia

Doctor in the House: A New Treatment for Neurofibromatosis in Malaysia

Professor Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist | Carol Lim, Living with Neurofibromatosis

Brain Waves: Living with SMA in Malaysia

Brain Waves: Living with SMA in Malaysia

Dr Azlina Ahmad Annuar, Consultant Neurogeneticist | Dr Ch’ng Gaik Siew, Consultant Clinical Geneticist & Paediatrician | Yap Sook Yee, Parent and Co-founder

Orphan Drugs And Rare Diseases

Orphan Drugs And Rare Diseases

Associate Prof Dr Asrul Akmal Shafie, Program Chairman of Discipline of Social & Administrative Pharmacy, Universiti Sains Malaysia

Rare Disease Day 2016

Rare Disease Day 2016

Prof Dr Thong Meow Keong, Consultant Paediatrician and Clinical Geneticist

 
 




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