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Rare Disease Day 2023: The Story of Baby Athif with Spinal Muscular Atrophy

Rare Disease Day 2023: The Story of Baby Athif with Spinal Muscular Atrophy

Nur Azizah Zamri | Mohd Farhan bin Mohd Sait

Public Policy Measures a Game Changer for Rare Disease Community?

Public Policy Measures a Game Changer for Rare Disease Community?

Dato’ Hatijah Ayob, President of Malaysian Rare Disorders Society, Chair of the Rare Disease Alliance Foundation Malaysia | Professor Dr. Thong Meow Keong, Professor of Paediatrics and Consultant Clinical Geneticist at UMMC, Advisor of Malaysian Rare Disorders Society

Doctor in the House: World Rare Disease Day 2020

Doctor in the House: World Rare Disease Day 2020

Dr George Lee, Consultant Urologist | Prof Dr Thong Meow Keong, Consultant Paediatrician & Clinical Geneticist

Living with a Rare Disease

Living with a Rare Disease

Bruce Lim, President, Malaysian Patient Organisation for Primary Immunodeficiencies (MyPOPI)

World Rare Disease Day 2019 – Shedding Light on Albinism

World Rare Disease Day 2019 – Shedding Light on Albinism

Maizan Mohd Salleh, person with albinism, founder and former president, Kuala Lumpur and Selangor Albinism Association | Datuk Dr Rokiah Omar, optometrist and low vision specialist, Universiti Kebangsaan Malaysia

 
 




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